Hi there, it’s been a while. Sadly, after all my good news, I got some bad news again – the yin to my yang on this cancer journey. My cancer has worked its way around my Copanlisib medication so it’s time for a new course of chemo. Spread over 5 days, it’s going to be tough and it’s going to cause my hair to drop out so it’s time for a new wig. It was so lovely having hair again but you’ll be pleased to know that I didn’t go for the wig featured, though I had a good laugh trying it on with my friend Sara. Continue reading
I’ve been a bit quiet of late – partly due to Christmas – which seems a long time ago and which was fab – and partly because treatment is making me ever so tired. I’ve had 12 doses of my current chemo drug (Copanlisib) and the cumulative effect is making me want to sleep. Alot. But I have to say that my life is a million times better than it was at the same time last year when I was in the throes of R-CHOP chemotherapy – I was so sick and tired – not recommended.
So apart from the ever-present fatigue, this year has started much better than last. And something surprising happened Continue reading
Mr H and I are so delighted to say that the latest trial of Copanlisib has started to show some good results. At present, its shrinking all of my tumours. We’re so happy to finally get some good results after almost a year and a half of fighting. If the Copanlisib continues to work, we hope it will shrink my tumours sufficiently so that I can have a stem cell transplant. Huge thanks to all for your kind comments and support x I’ll write more soon x
Hello. Its been a while. Sadly, I’ve been really unwell since my last update but I’m pleased to say I’m on the mend now – feeling physically stronger and ready to fight again. Unbelievably, whilst on a very strong dose of Morphine, I managed to fit in a magazine photo shoot for the amazing cancer charity Look Good Feel Better. So in the spirit of an eighties super model, I wanted to tell you that I don’t get out of bed for less than…well probably a tenner these days. Read more>> Continue reading
Hello there. Rachael is a tough act to follow on the blogging front – but a combination of a challenging few weeks and a bit of writers’ block means you’ve got a few words from her husband this time. I hope I don’t disappoint. Whilst Rachael has had a rough month with a cancer, chemo and cold combo we finally got some good news last week. Continue reading
I watched Ridley Scott’s The Martian this week and couldn’t help but see some parallels between my predicament and that of Matt Damon’s. Damon plays the role of Mark Watney – an astronaut who is left behind – presumed dead – following a mission to Mars. Alone for hundreds of days on Mars – or Sols in the film – he is reliant on the brightest minds on planet Earth to get him home in one piece. He’s alone and keeps himself sane by exploring ways to improve his life on Mars whilst he waits to be rescued. He takes big risks to get the ending he wants. Continue reading
I’m starting a cancer trial next week, it’s chemotherapy but it’s targeted so I’m hoping I won’t get all the rank side effects from the full blown variety. I’m so lucky to be on it – 1 of 66 people globally. Whilst we know that the chance of success is low, today’s cancer drugs started out in trials and that gives us great hope. Continue reading